Thanks for joining me as I document my personal journey with Inclusion Body Myositis (IBM). My intent is to detail my personal experiences with IBM in hopes of creating an informative record for both fellow IBMers and the medical field. Please interact with me and hopefully we can develop a reference base for all interested parties.
When I was first diagnosed in 2001 there was not much known about IBM and most doctors had to look it up. I am luckier than a lot of people dealing with this disease in that I live in Toronto, Ontario, Canada where there are a lot of excellent medical facilities and knowledgeable resources available.
My name is Paul Bond, born 1950 and diagnosed with IBM in 2001 after several years of unexplained trips and falls. I was working as a sales and service representative in the railroad maintenance business and continued to work until 2014 when I started working from home on a contract basis. My wife and I were sailors and skiers and enjoyed touring on our motorcycle until I was no longer able to participate in these pastimes safely.
Its been a rough ride and much has changed but I still strive every day to have the best life possible.
I was recently reminded of the Serenity Prayer written by American theologian Reinhold Niebuhr (1892-1971) which is very appropriate in these circumstances.
God, grant me the serenity to accept the things I cannot change
Courage to change the things I can,
And the wisdom to know the difference.
You are most certainly not faint of heart and you excel at making the most of every day. Wishing you much success as you share your journey with others. Kudos to you for doing so.
ReplyDeleteThank you so much Beth, your support and assistance means so much to me. You're the best!
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